View Full Version : COBRAEARL Four Years with Pancreatic Cancer
cobraearl
09-30-2019, 08:51 PM
Many of the Old Timers know me as a previous parts supplier. Builder of FFR 2362 and prolific poster to the two previous forums.
TODAY, September 30, 2019 is my Four Year Aniversary of being diagnosed with Stage 4 Pancreatic Cancer. Would not be anything to celebrate EXCEPT, IM STILL ALIVE!!!!!!!!!!!!!!!!! And, quite frankly doing pretty good for a 71 year old OLD MAN willing to do about anything to hang out with a group of SUPER NURSES every two weeks.
TOMORROW, I start my 93rd round of Chemo. That’s Folfirinox plus the experimental Drug CPI613. The doctors tell me to keep doing it as long as I can stand to do it. (GOOGLE CPI613) (GOOGLE Rafael Pharmaceuticals)
LAST Friday I had My 24th MRI and 25th CT Scan. No results yet but the last 3 years these scans have been CLEAR.
ITS BEEN FOUR GREAT YEARS…….
Nothing changes your attitude like being told BASICALLY, you gonna die and pretty soon.
As many of you have read, I was in a PHASE One study of our drug combination. 20 of us at only one hospital. 4 or 5 lived about 3 years. (UNHEARD OF). One of us is still alive afte 5 years and 3 months. AND IM STILL ALIVE. 4 and 5 years on chemo alone is ABSOLUTELY UNHEARD OF….
THE GREAT NEWS!!!!! Our drug combo is now in a PHASE THREE study. Many hospitals WORLD WIDE…. Hopefully, some time in 2020, it will get approved by the FDA.
IF YOU KNOW of anyone needing info on pancreatic cancer give them my special email address: PCearlgroce@gmail.com.
By the way, in those 4 years, I’ve gotten to watch my 3 grandkids get 4 years older.
Had a 50th wedding anniversary last Christmas
Went to Disney World Twice,
Yellow Stone,
Key West,
Burning Man 3 times,
Toronto a dozen times,
We have put 70,000 Miles on our Class B Camper,
Bought a small Condo at Carolina Beach last fall,
My Son Got Married at 45, back in June (I stood as his Best Man)
AND HIS WIFE is PREGNANT with my Second Grand Son… (this one will have my last name... :) :) :) )
It has been Four Great Years. I Hope for 30 more and Hope to see THOUSANDS of Pancreatic Cancer Patients have the same Great Life after diagnosis that I’ve had. Hopefully, two years from now Stage 4 Pancreatic Cancer will not be considered a Death Sentence.
People tell me to have a good day.... I TELL THEM: "EVERY DAY IS A GOOD DAY"!!!!!!!!!!!
JohnnyB
09-30-2019, 09:30 PM
Wow Earl, just wow! You are living a blessed life. So happy for you, your family and all the others you and your Docs are helping.
Keep on keeping on.
silver_pilate
09-30-2019, 10:00 PM
So happy that things are going as they are for you! It was a gut punch to hear of your diagnosis, but praise God for your success!
Nathan
cv2065
09-30-2019, 10:23 PM
That's fantastic Earl! It's great that you are paving the way for a new treatment to help others!
frankeeski
10-01-2019, 12:54 AM
Good news Earl. I'm glad you're still around too.
herb fraser
10-01-2019, 01:52 AM
Wonderfull news earl !!!!!!!
Jeff Kleiner
10-01-2019, 05:17 AM
Once again my old friend, I'm so happy that your treatments have had such tremendous success! It's a better world with you in it!
Jeff
Aircontroller
10-01-2019, 06:30 AM
You’re a walking miracle Earl! Many more blessings ahead!
Many of the Old Timers know me as a previous parts supplier. Builder of FFR 2362 and prolific poster to the two previous forums.
TODAY, September 30, 2019 is my Four Year Aniversary of being diagnosed with Stage 4 Pancreatic Cancer. Would not be anything to celebrate EXCEPT, IM STILL ALIVE!!!!!!!!!!!!!!!!! And, quite frankly doing pretty good for a 71 year old OLD MAN willing to do about anything to hang out with a group of SUPER NURSES every two weeks.
TOMORROW, I start my 93rd round of Chemo. That’s Folfirinox plus the experimental Drug CPI613. The doctors tell me to keep doing it as long as I can stand to do it. (GOOGLE CPI613) (GOOGLE Rafael Pharmaceuticals)
LAST Friday I had My 24th MRI and 25th CT Scan. No results yet but the last 3 years these scans have been CLEAR.
ITS BEEN FOUR GREAT YEARS…….
Nothing changes your attitude like being told BASICALLY, you gonna die and pretty soon.
As many of you have read, I was in a PHASE One study of our drug combination. 20 of us at only one hospital. 4 or 5 lived about 3 years. (UNHEARD OF). One of us is still alive afte 5 years and 3 months. AND IM STILL ALIVE. 4 and 5 years on chemo alone is ABSOLUTELY UNHEARD OF….
THE GREAT NEWS!!!!! Our drug combo is now in a PHASE THREE study. Many hospitals WORLD WIDE…. Hopefully, some time in 2020, it will get approved by the FDA.
IF YOU KNOW of anyone needing info on pancreatic cancer give them my special email address: PCearlgroce@gmail.com.
By the way, in those 4 years, I’ve gotten to watch my 3 grandkids get 4 years older.
Had a 50th wedding anniversary last Christmas
Went to Disney World Twice,
Yellow Stone,
Key West,
Burning Man 3 times,
Toronto a dozen times,
We have put 70,000 Miles on our Class B Camper,
Bought a small Condo at Carolina Beach last fall,
My Son Got Married at 45, back in June (I stood as his Best Man)
AND HIS WIFE is PREGNANT with my Second Grand Son… (this one will have my last name... :) :) :) )
It has been Four Great Years. I Hope for 30 more and Hope to see THOUSANDS of Pancreatic Cancer Patients have the same Great Life after diagnosis that I’ve had. Hopefully, two years from now Stage 4 Pancreatic Cancer will not be considered a Death Sentence.
People tell me to have a good day.... I TELL THEM: "EVERY DAY IS A GOOD DAY"!!!!!!!!!!!
frankb
10-01-2019, 07:34 AM
Great news! Stick around a few more years!
Garry Bopp
10-01-2019, 08:32 AM
That is awesome news for sure, especially for those diagnosed with pancreatic cancer. Glad that you are still around to share your story and enjoying life!
Garry
Great news Earl, keep up the fight.
Walt
ckrueger
10-01-2019, 10:11 AM
Wow! Great news Earl. Hang in there and stay tough!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! !!!!!!!
Boydster
10-01-2019, 01:10 PM
Great news, Earl. Keep on truckin...
Ponymedic
10-01-2019, 07:11 PM
Great News Earl
chmhasy
10-01-2019, 07:39 PM
Great News Earl. You are in our prayers
I hope your grandkids get to watch you get really old!
Bob-STL
10-02-2019, 11:08 AM
Earl,
Simply wonderful!
Your updates always brighten my day!
GoDadGo
10-02-2019, 11:23 AM
I Am Glad To Hear That You Are Still Here!
Keep Living & Loving Every Day You Are With Us!
Keep Fighting, Fighting & Fighting!
Steven K
10-02-2019, 12:35 PM
Earl,
I couldn't be happier for you, congratulations!
I am sure you don't remember me, but you spent time with me and my son at the Autofair in Charlotte in 2002 and convinced me to buy the Cobra kit, plus we've seen you at a few Whitby Christmas parties.
All the best, and continued success in battling cancer!
AC Bill
10-02-2019, 01:38 PM
Absolutely Amazing, is all I can think of. What a blessing you were chosen to be involved in the trial.
The fact that your scans have been clear for three years already, means the initial treatments took effect in an incredibly short time. You'd think that, would be reason enough to make this treatment available to the public sooner, then later. It may benefit thousands more.
cobraearl
10-02-2019, 02:09 PM
I have long maintained that ME and my Buddy David (patient #5) Should be able to appear before the FDA and IMMEDIATELY GET APPROVAL...…. No, they got to FUK around for years and months while THOUSANDS that might be saved OR have their life extended by many months don't get the drug....
WHAT HAVE THESES STAGE FOUR PEOPLE GOT TO LOSE...….. 99% will be gone in about 3 years. A high percentage will be gone in just months....
Its public record that 61% of our 20 study participants had a complete response or a partial response to the drug. SIXTY ONE PERCENT...
BTW, Tuesday, got the word on my latest scans..... ALL CLEAR, just like the previous 3 years. And, my cancer marker was WAY BELOW normal. Just like the last three years.
ALL IS WELL, FOR THIS LUCKY, PC PATIENT.
Xkuzme1
10-03-2019, 07:05 AM
Amazing story.
Choppin onions over here. Onions.
X
j.miller
10-03-2019, 08:11 AM
Love you brother....Keep livin the full life....YOU DA MAN !
Jetfuel
10-03-2019, 06:21 PM
Earl...may you be blessed with many more years and many more grandkids to spoil....the real job of old people;)
MARIAH
10-04-2019, 07:09 AM
You da man, Earl.
Lady she and I are so excited about your continued progress.
Maybe we can have an Old Timers gathering at VIR next spring....drink "clear" stuff and tell lies.
Jacob McCrea
10-04-2019, 12:44 PM
It made my day to read this. Hang in there!
SerpantFL
10-04-2019, 03:23 PM
God bless you. Keep on driving healthy and knock out those odds!... Anthony
Paul Mischenko
10-05-2019, 01:16 PM
While we've never met, your story is very inspiring and I'm sure would really help others in a similar situation. Wishing you many more years of enjoyment. Best Regards, Paul
BLUE KNIGHT
10-09-2019, 11:12 PM
Yes Earl I do remember you from the origins of FFR …. I'm sorry to hear about this and am sending prayers …… Mike