cobraearl
04-03-2019, 01:40 PM
Hi this is Earl Groce AKA CobraEarl, 44 month survivor of Stage Four Pancreatic Cancer. I was last published by PanCan in January of 2018 and Lets Win PC in May 2018. This is an update to my story.
Life continues to be GOOD!!!!!! I still get chemo every two weeks. Right now, Im in my 81th round of Folfirinox PLUS the experimental drug CPI613. I still 100% credit CPI613 for saving my life. My Wife and I still visit our grandkids in Canada multiple times each year. I always drive the 735 miles each way. I continue to work around the house and yard. My wife and I bought a SMALL condo at Carolina Beach back in October of last year. We are still decorating the condo. We visit the beach across the street from the condo often.
December 28, 2018 Juanita and I celebrated our 50th wedding anniversary with about 70 of our family and friends. My new stage four Pancreatic Cancer friend David Wingo, who will celebrate 5 years in June 2019, since being given two weeks to two months to live celebrated with us. David was patient #5 in the 20 person phase I dosing study. I was patient #18.
Last August Juanita and I made it to our FOURTH Burning Man festival. Burning Man has been important to us because we had just returned from our first Burning Man a couple of weeks before I got my AWFUL diagnosis… Stage Four Pancreatic Cancer also in my lungs, liver and fatty tissues. Juanita told me then that we would go back. I seriously doubted I would ever return but WE DID, Three Times…
LIFE IS GOOD. About 2 days during chemo every other week, I feel about like I have the flu but I CAN LIVE WITH THAT. I’m still convinced that CPI613 helps me and other phase I study patients that I met tolerate the Folfirinox. Rafael does not make this claim BUT, I DO.
IF you get a chance to tell someone my story of if you need help for a Stage Four Pancreatic Cancer patient, PLEASE CONTACT me at PCearlgroce@gmail.com
Below are four articles about David Wingo, Me and CPI613:
May 22, 2018; https://letswinpc.org/my-treatment/2018/05/22/stage-iv-clinical-trial-pancreatic-cancer/
May 19, 2018; https://www.pancan.org/stories/survivors/survivor-advocates-second-opinion/
Jan 22, 2018; https://www.pancan.org/stories/survivors/clinical-trial-participant-encourages-patients-actively-seek-clinical-trials/
July 17, 2017; https://www1.cbn.com/content/new-hope-cancer-patients
Life continues to be GOOD!!!!!! I still get chemo every two weeks. Right now, Im in my 81th round of Folfirinox PLUS the experimental drug CPI613. I still 100% credit CPI613 for saving my life. My Wife and I still visit our grandkids in Canada multiple times each year. I always drive the 735 miles each way. I continue to work around the house and yard. My wife and I bought a SMALL condo at Carolina Beach back in October of last year. We are still decorating the condo. We visit the beach across the street from the condo often.
December 28, 2018 Juanita and I celebrated our 50th wedding anniversary with about 70 of our family and friends. My new stage four Pancreatic Cancer friend David Wingo, who will celebrate 5 years in June 2019, since being given two weeks to two months to live celebrated with us. David was patient #5 in the 20 person phase I dosing study. I was patient #18.
Last August Juanita and I made it to our FOURTH Burning Man festival. Burning Man has been important to us because we had just returned from our first Burning Man a couple of weeks before I got my AWFUL diagnosis… Stage Four Pancreatic Cancer also in my lungs, liver and fatty tissues. Juanita told me then that we would go back. I seriously doubted I would ever return but WE DID, Three Times…
LIFE IS GOOD. About 2 days during chemo every other week, I feel about like I have the flu but I CAN LIVE WITH THAT. I’m still convinced that CPI613 helps me and other phase I study patients that I met tolerate the Folfirinox. Rafael does not make this claim BUT, I DO.
IF you get a chance to tell someone my story of if you need help for a Stage Four Pancreatic Cancer patient, PLEASE CONTACT me at PCearlgroce@gmail.com
Below are four articles about David Wingo, Me and CPI613:
May 22, 2018; https://letswinpc.org/my-treatment/2018/05/22/stage-iv-clinical-trial-pancreatic-cancer/
May 19, 2018; https://www.pancan.org/stories/survivors/survivor-advocates-second-opinion/
Jan 22, 2018; https://www.pancan.org/stories/survivors/clinical-trial-participant-encourages-patients-actively-seek-clinical-trials/
July 17, 2017; https://www1.cbn.com/content/new-hope-cancer-patients